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LLS Fast Facts (Services)

An estimated 912,938 people across the United States currently battle leukemia, lymphoma andmyeloma. The Leukemia & Lymphoma Society (LLS) offers the most comprehensive array of services to blood cancer patients and their families. Last year alone, LLS made 4.9 million contactswith patients, caregivers and healthcare professionals.

INFORMATION AND EDUCATION
National Programs:

Information Resource Center
The Information Resource Center (IRC) provides information and resources useful to patients, their families and health care professionals, and is staffed by master’s level oncology social workers, nurses and health educators. Fact sheets for frequently asked questions and a referral database to other helping organizations are available. Patients, families and professionals may call the Information Resource Center toll-free number at (800) 955-4572 Monday through Friday, 9 a.m. to 6 p.m., ET or email to infocenter@lls.org.
>79,692 inquiries in 2009
>Translation services available in more than 165 languages

Internet
LLS’ Web site, www.LLS.org, serves a wide variety of education and information needs. Users can personalize their LLS Web pages to keep current with disease specific updates and local chapter education, support and event activities. The site features a comprehensive overview of LLS programs and services, Family Support Group locations, information about our peer-to-peer program First Connection, and other programs.
> 4.3 million unique visits to patient services/disease information pages in 2009

Teleconferences & Web casts

LLS sponsors teleconferences and Web casts for patients and caregivers and health care professionals on leukemia, lymphoma and myeloma and survivorship issues. A calendar of these free events and archives of past events are available in the “National Education Workshops” section of www.LLS.org.
> 407,148 Web cast and teleconference program participants in 2009

Educational Materials

An extensive collection of educational materials is offered free-of-charge to patients and health care professionals. Each year, LLS distributes booklets, brochures, fact sheets and DVDs through the Information Resource Center and local LLS chapters. Many materials are also available to view and download at www.LLS.org. Downloadable materials are available in English, Spanish and French.
> More than 1.2 million booklets, brochures and DVDs distributed in 2009

Chapter-based Programs:
Each of LLS’ 64 chapters is staffed with a patient services manager who oversees the chapter’s services to patients and their families. Patient services managers are healthcare professionals, often with a background in oncology nursing or social work.

Community based education, including the following three programs, offered through all the
chapters
> 48,000 patient and caregiver participants in 2009
> 8,570 healthcare professional participants in 2009

The Road to Discovery: Emerging Therapies in Blood Cancer
This program provides patients, families and healthcare professionals with a clear description of what clinical trials are, how cancer drugs are developed, and what the emerging treatment options are for leukemia, lymphoma, and myeloma.

Milestones in Myeloma Therapy: An Overview for Patients and Caregivers

This program presents an overview of myeloma, treatments, emerging therapies and managing side effects and how to find emotional support when living with the illness.

Getting the Best Cancer Care at Age 55 and Older

This education program presents an overview of the many factors, not age alone, that healthcare professionals should assess to determine an appropriate cancer treatment plan for an older adult.

SUPPORT SERVICES

Family Support Groups:
LLS has developed nearly 526 Family Support Groups at 64 chapters throughout the United States and Canada. LLS also has more than 930 volunteer support group facilitators with backgrounds in oncology nursing or social work. Groups are guided by two volunteer oncology health professionals, and provide information and support, and encourage greater communication among patients, families, friends and health care professionals.
> 11,000 participants in Family support groups in 2009

First Connection
:
First Connection is a program that links newly diagnosed patients to a peer volunteer who has experienced a similar diagnosis. A trained patient-volunteer currently in remission phones (or visits) the new patient to share information and support. This program is available through LLS chapters.
> 7,076 “First Connections” in 2009

Patient Financial Aid Program

For more than 45 years, LLS has helped patients demonstrating significant need to obtain financial assistance to cover a portion of their treatment costs. As of July 1, 2009 the LLS Patient Financial Aid Program, offers $150 per year to those with a confirmed blood cancer diagnosis in active treatment or ongoing follow-up. Patient Financial Aid funds are subject to availability.
> 21,370 Patient Aid recipients in 2009

Co-Pay Assistance Program

This new program helps patients with many kinds of blood cancers meet their health insurance or Medicare Plan Part B or D premiums or co-payment obligations related to treating their cancer. Patients with prescription drug coverage, Medicare beneficiaries under Medicare Part B and/or Medicare Part D, Medicare Supplementary Health Insurance or Medicare Advantage should check with LLS to see if they meet eligibility requirements to receive financial support. Co-pay assistance is subject to fund availability by specific blood cancer diagnosis. For more information call, (877) LLS-COPAY [(877) 557-2672] or visit www.LLS.org/copay.
> 6000 patients received LLS co-pay assistance in 2009


The Trish Greene Back to School Program for Children with Cancer

This program is designed to increase communication among health care professionals, parents, patients and school personnel to assure youngsters a smooth transition from active treatment back to school. Printed literature, videos and other materials to aid the process are available through all local chapters, including:

• Welcome Back: Facilitating the School Experience for Childhood Cancer Survivors
Chapter education program. This education program for school nurses and other school
personnel discusses possible emotional, physical and cognitive late effects of cancer
treatment in children and offers numerous resources that can assist childhood cancer
survivors to flourish in the school environment post-treatment.

> 2898 school personnel, healthcare professionals and parents participated in the
Welcome Back program

• Learning and Living with Cancer: Advocating for Your Child’s Educational Needs
This booklet offers parents information on the learning challenges children may face during
and after cancer treatment, laws that protect the educational needs of children with cancer
and specific ways that schools can help meet a child’s educational needs.

About The Leukemia & Lymphoma Society
The Leukemia & Lymphoma Society ® (LLS) is the world’s largest voluntary health agency dedicated to blood cancer. The LLS mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world and provides free information and support services.