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One of my goals was to present patient stories, educate and help people to connect to why I feel so strongly about this organization. Next week, April 14, will mark the anniversary of the passing of Brenda Donato. For those of us that knew her, she truly inspired our lives in so many ways and she is still very missed. I wanted to highlight her story and some of my own thoughts about Brenda.
I knew Brenda as her transplant coordinator. It is a very intense relationship when you are working to get a patient and family prepared for such a huge medical procedure. What struck me about her was how amazingly positive she was. She was already a full cult member of TNT and had a HUGE entourage and support system. Believe me; I am saying this with great affection and humor. It was a tremendous amount of work to try to manage the confines of her treatment with her tremendous social calendar, much of her calendar involving TNT. TNT gave Brenda a focus and a support system when she needed it most. It gave her an outlet to encourage and inspire people and to heal. With all of that however the thing that was the most overwhelming thing to me about Brenda was not about how she lived her life but how she accepted and handled her death. I have never seen someone so young and so full of life handle an imminent death with such amazing light, humor, grace and true acceptance. This picture was taken the Thursday (2 days) before she died. To this day, it was one of the most powerful evenings I have had in my life and a time that I will never forget. She was surrounded by Jim, Lindsay, Lisa, Sue, cousin Maya and family. I spent a few moments with her privately. She had a light coming from inside her that was effusive and amazing. She spoke of having no regrets. Full confidence that Jim and her boys would be fine (and they are). I asked her if she knew how many lives she had touched and she lit up saying "Yes, I do!!!" She said to me the only thing she wished she could have done more of was get up and speak to people like I did for TNT. I have spoken about the way she handled her death with R2, her dear friend and TNT coach and both of us as medical people share the same feeling and observation of how powerful this was for both of us.
Brenda was a major blogger and I did tell her that if anyone could get a computer into heaven and blog it would be her. Here is her final MySpace blog entry from April 2007. What I want her to know is that EVERY time I give any talk for the LLS, I am thinking of her and doing it on her behalf. She is still inspiring people through TNT today, her name is mentioned often and people who did not ever know her are inspired by her story. She had a gigantic smile, effusive personality and a huge heart. Her story and her name have raised and continue to raise a lot of money for the LLS. Brenda was special. We love and miss you Miss B |
